It starts off well for the first six hours. I sleep pleasantly enough on my side until I wake up on my back. One (or several) call(s) to the night nurse gets me laying with my left cheek on the pillow once again. This pattern typically continues until the caregiver comes in at a quarter [...]
Archive for the ‘Life’ Category
Reveille at 0530
Posted in Life on September 27, 2011 | 7 Comments »
Marco Polo
Posted in Allegedly Funny, Life on September 7, 2011 | 3 Comments »
Anyone who has ever spent some time in or near a swimming pool is probably familiar with the game Marco Polo. Just in case you aren’t the kind of person who lounges around a pool or perhaps you are but you still haven’t the foggiest idea to what I am referring, here’s a quick explanation: [...]
A Post with the Most
Posted in Life on August 31, 2011 | 6 Comments »
My apologies for the lack of productivity on the blog lately. There’s nothing wrong with the eye gaze or with me — besides still having ALS — so there’s no need to wonder what’s going on with your friendly neighborhood quadripleege. I’m a-otay! Here’s what I’ve been up to: Preparing for another season of Fantasy [...]
The Week of A Thousand Appointments
Posted in Allegedly Funny, Life on August 20, 2011 | Leave a Comment »
Actually, it was only six appointments but, for some reason, a thousand sounded a whole lot more dramatic than the real number. I apologize in advance if you were hoping to read about the additional 994 other appointments I hyperbolized about going to in the title. My bad! We started out the week on Monday [...]
E Ticket Ride
Posted in Life on August 19, 2011 | 2 Comments »
I felt the tugging tightness emanating from the center of my chest just as I was about to drift off to dreamland Wednesday night around eleven. It didn’t feel particularly painless to my nearly unconscious mind and body at the time it happened. It was as if something inside me was slowly being rotated, counterclockwise, [...]
As Promised
Posted in Allegedly Funny, Life on August 5, 2011 | 9 Comments »
Having never been buzzed — hairstyle-wise, of course — the time was right for a radically different, and most importantly, low maintenance, look for the outside of my dome. Basically, I no longer resemble The Donald with a small furry critter on my head. Don’t know if I’ll ask for the same thing next time [...]
Buzzed Again
Posted in Life on August 3, 2011 | 1 Comment »
This was supposed to be a post where I’d tell you all about my spiffy new buzzed off haircut. At the end I planned to include a picture showing everybody the brand new do… …But a funny thing happened happened on the way to the Publish Now button: I thought I killed my Eye Gaze. [...]
Introductions Are in Order
Posted in Emma, Life on July 31, 2011 | 5 Comments »
As a result of a hastily called family meeting and a nearly unanimous, bipartisan vote, we, The Picettis, have decided to allow Emma to get her first pet. So, it was late Thursday morning that mother and daughter returned home with Lady Ballerina. Lady Ballerina is a small, purple betta fish who, so far, seems [...]
This and That
Posted in Ask the Audience, Life on July 25, 2011 | 13 Comments »
Just a few of the items floating through the mental in-box of ALS Boy these past few days. The San Francisco Giants converged on the White House today to celebrate last year’s World Series Championship with President Obama. No truth to the rumor that Brian Wilson’s Beard was forced to go through additional security screening [...]
A New Use for an Old Friend
Posted in Allegedly Funny, Life, Treatments on July 11, 2011 | 4 Comments »
Besides the wheelchair and the bed, the only other item in my possession that I could not live without is my brown, faux-leather recliner. It is way more than just a piece of furniture to me. I receive at least three hours of forced air via my BiPap every evening while seated in the reclined [...]
