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Archive for the ‘Symptoms’ Category

Since we are currently smack dab in the middle of superhero season in the movie theaters (X-Men: First Class, Green Lantern, and Thor) and in the news (Peter Parker was recently killed off in Marvel Comics’ Ultimate Spiderman latest issue), I thought that this would be the perfect opportunity to share with you some of [...]

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Unexpected Plot Twists

As the number of days of my living with (a diagnosed case of) ALS eclipses the 1300 mark, I find myself in the perpetual state of being both amused and annoyed by what this P.O.S. disease has done to my body.  While a majority of my symptoms — like the inability to walk, talk, eat, [...]

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Scratch That Itch

If I was asked to compile a list of the most frustrating aspects about having ALS,  you might think that not being able to walk or talk or eat by myself or even stand up when I pee would all be vying for the top spot.  You can bet your arse that each of those [...]

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Information Overload

The warm spray of the hand-held shower nozzle washes across my back. My thigh muscles clench tightly as the soapy loofah brushes over them. White knuckles recede as my death-grip on the silver grab-bar becomes tenuous thanks to the sudsy build-up between my fingers. The water in my eyes burns and stings. My right eyebrow [...]

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A Weighty Matter

One of the first things they tell you (over and over again) when you catch ALS is not to lose any weight. They want you to maintain as much of your poundage as possible because once it’s gone, it’s hard to get back. I must have royally pissed them off when I dropped a quick [...]

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TMI

A brief list of a few things you probably didn’t want to know about me: Drooling. These days, I drool more than a teething infant. It’s as if somebody turned on a faucet in my mouth whenever I lean my head forward. When Emma sees it happen she says “Uh oh” and grabs a napkin [...]

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Breathing by the Numbers

As odd as it may sound, I truly believe that I have been (relatively) fortunate with my ALS symptoms so far. Sure, walking and talking have become a whole lot more challenging and tenuous for me, and activities such as eating, shaving, showering, getting dressed, and stair climbing have become de facto group activities but [...]

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I have always been a guy who appreciates routine. I’m not as OCD as I used to be like the years when I parked my truck in the same space at work every day. Or when I took a picture down the same hallway every school day at the exact same time over a three [...]

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I’m sure that if I wanted to I could stretch this list to, say, infinity, but that would take way too long for you to read and even longer for me to write so for the sake of all involved I will condense my vitriol to a relatively short list of ten things that really [...]

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So, I had this dream this morning right before I woke up to get up for the day. It happened sometime between the time my wife left for work around 6 am and the time I actually arose from my night’s rest around 7:30 am. Before I continue on with the dream, allow me to [...]

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