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Archive for the ‘Treatments’ Category

Feeding My Face

I’ve had the PEG tube protruding from my belly for about a week now. It hurt like hell going in — the local had worn off early on — and I felt every incision as it was made. I can feel the water, but not the Ensure, as it enters my stomach. I taste nothing [...]

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Psych!

No feeding tube for me… just yet. Due to the mid-procedure discovery that I possess a ‘J-shaped’ stomach, the installation of my PEG-tube has been delayed until some slightly more sophisticated endoscopic equipment can be booked for my doctors’ use. Rescheduled procedure date: February 16th at high noon. And speaking of high, I still very [...]

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Another Mouth to Feed

The next time you read me I will be rockin’ a brand new feeding tube. Conscious sedation begins tomorrow at 8 AM, details and photos to follow.

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An Unexpected Proposition

Because of my peanut and seafood allergies, I am not the biggest fan of Thai food. My dietary restrictions, as well as my relatively closed-minded sense of culinary adventurousness, limit me to only the blandest of items on the menu. But I will go to Thai Time in San Carlos any day of the week [...]

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Watsu

I am floating. Not in the sky on a fluffy white cloud. Not in the vast and empty blackness of space. I am floating in water. F   L   O   A   T   I   N   G My heavy and uncooperative body made buoyant by a trio of devices attached to my legs and neck. At first, I [...]

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When it comes to choosing my music for an acupuncture session, I take the job very seriously. The right choice can be positively inspirational (Steve Miller Band’s Greatest Hits or KFOG’s Live from the Archives) but the wrong CD selection spells absolute disaster (The Cult’s Electric). A good decision enhances a session whereas a bad [...]

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I would like to take the opportunity to provide you, dear reader, with an update of sorts from a previous ALS Boy blog entry entitled The Perfect Shitstorm. In that column, I recall airing out the somewhat disheveled state of my ALS treatment network that seemingly and simultaneously collapsed right around the holidays. I am [...]

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I have always been a guy who appreciates routine. I’m not as OCD as I used to be like the years when I parked my truck in the same space at work every day. Or when I took a picture down the same hallway every school day at the exact same time over a three [...]

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To Trial or Not To Trial

I have my final meeting with Claudia this Thursday and I’m feeling kind of bittersweet about it. On one hand, I won’t miss the routine of filling out the same survey every time I visit (too boring), removing my shirt (too sexy) and sleeping my way through not one but two EKG tests, peeing in [...]

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I have been receiving Medical Qi Gong therapy (pronounced chee-gong) from Christina twice a week for the past two months. Of all the treatments and modalities I’ve been getting to treat my ALS symptoms and causes, I absolutely believe that my work with Christina is providing me the most benefit. Our sessions help me not [...]

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